A Wish to live…
A Mission to find a Cure for Sanfilippo
In February 2015, we learned that our daughter, Aislinn, has a rare genetic disorder called Sanfilippo Syndrome. With no available treatment or cure, Sanfilippo stole her voice, her mobility, her ability to eat and ultimately, in October 2022, it stole her tomorrows.
Aislinn’s life continues to be honored through Aislinn’s Wish Foundation, which seeks to find a cure for Sanfilippo.
Aislinn’s Butterflies
Wishes for Aislinn Blog
FOREVER IN OUR HEARTS
UPCOMING EVENTS
8th Annual Carolina Drive to Cure Sanfilippo Golf Tournament
May 10th, 2024 at Rocky River Golf Club, Concord, NC